Drew is 3

Our Drew is 3! Yeah! We jump for joy that he has successfully made it another year. He has shown the Doctors and all of us that he is strong, stubborn, and our little miracle man. He had a wonderful birthday. His Papa, Grammi, Mommy, and big brother Will took him to lunch, then ice cream and finally the playground for some fun. We ordered chinese food (Drew LOVES chinese noodles!) for dinner for him and then just played outside the rest of the night.

He had his birthday party that weekend. We went to the same wonderful place we have been going. It was a Blues Clues birthday party. He is obsessed with Blues Clues and his notebooks. He had such a great time with all of his friends and family. He tried to get the notebook off of his cake before the party began. The notebook was made out of frosting so he just left some marks on his cake trying to get it off to use it, true Drew style! He had two huge pieces. It was a wonderful day and one that we are all thankful to God that we have been able to celebrate for the last 3 years. Each day that Drew is active, full of love, and of course naughty, we cherish for we do not know what Drew's future holds so we just enjoy the present.

Finding Answers

We have spoken to his cardiologist here in Buffalo and we have seen a pediatric neurologist. Both Doctors are in agreement that Drew had a seizure. The neurologist wants Drew to have a sedated MRI and then be admitted into the hospital for 3 days to be observed. We have the MRI on June 10th here at Children's Hospital. We will be admitted to the hospital on July 19, 20, and 21st. Drew will have a 3 day EEG and video monitored for seizures.

For everyone that knows our Drew, you know that video footage will definitely be some show! He will not be a well behaved patient.

Now we just wait and see what the results will be.

Big Scare

On Monday night, Drew had a bad episode. He was waiting for his coat to go on a walk, his eyes rolled back and he quickly became unresponsive. He was lifeless and blue around the mouth. It was a scary situation. I called 911, my Dad stayed with Drew to check on his breathing ( it was very shallow and difficult to even tell if he was breathing) and Brian ran to get our neighbor who is an EMT. Our neighbor Mike quickly came and began rescue breaths until the ambulance arrived. Drew was rushed to our hospital where he was stabilized and then transported to our Children's Hospital. We spend some time in the ER, then we were admitted. After extensive tests it was determined that Drew did not have a seizure, just a severe drop in blood pressure which resulted in his heart slowing down. As of right now we have no idea what caused it, and if it will happen again. Drew has proven again that he is a fighter. He is now back to himself and it is his family that is trying to return back to normal after this horrible scare! We will have a follow up appointment on Tuesday with his Cardiologist. I hope we can find out more answers.

Rubber Ducks

Last Saturday, I noticed that Leo from the Little Einsteins was floating in the toilet. When I asked the boys why Leo was in the toilet, Drew replied "he's thwimming" (swimming). I knew there was probably more things swimming in the toilet and it had to be investigated. I could not flush the toilet so I called Brian and he came home from work. He had to take apart the toilet and sure enough there was a yellow rubber duck! Then he put the toilet back together and it still would not flush. He took the toilet apart again and this time found a blue rubber duck! William had no problem blowing his little brother in. He said Drew put the ducks in the toilet. We asked Drew if he put the duckies in the toilet and he replied "yup". After a quick assessment of all the bath toys, we feel confident that we have retrieved everything from the toilet. Drew never makes things dull.

update

Wow it has been so long since I last posted any info about Drew. I guess that is a good thing that we have not had any major news to report. He is doing well. He continues to have the purple/blue hands, lips and feet during the winter. We can't wait for Spring and then this is not as often.
We have started to realize that he wants to do everything that everyone else does now, but this is not realistic for him. He tries very hard to keep up with the other kids ( his brother especially) but he gets blue easy and winded. This is difficult for him but more difficult for us as his parents. This Summer is going to be very hard to keep him less active. We will talk to Dr. Orie about this at our next appointment.

Dr. Orie appointment

We had Drew's cardiologist appointment the other night. He was to say the least very naughty! Poor Dr. Orie, he tried very hard to get a temperature, weight, height and pulse ox from Drew. It was a challenge. Then it was time for the echo. He was not good for that either. Dr. Orie told us that for doing the echo on a moving target it looked good! His function remains the same, no leaky valves or blockages. All in all he is doing well. His pulse ox was even 80. That is actually very good for Drew. Dr. Orie anticipates that drew's next surgery, the fontan will be in a year and a half to two years. Fingers crossed that we are able to go that long.

Snack time

Drew did not want to leave school when it was time for dismissal, so I asked him if he wanted to go and eat lunch, he said " sure" then sat down at the classroom's table!
His Teacher, Mrs. Colleen said he really enjoys snack time. I am not surprised.