Heart Day February 14th 2011

Today is Valentine's Day. He should be here to celebrate heart day. He should just be here! He always had a bunch of special valentine's outfits or shirts. This year would have been no different. His closet is full of the special shirts he was going to wear all last week. Today he was going to wear his special heart shirt. The one that said "I'm a survivor". He was our special little fighter. Our survivor.

Instead of finding the perfect valentine cards and treats for him to bring his friends at school, or giving him his valentine gift this morning when he woke up, we attended a mass for him at church. Not the way I had planned for our heart day to go.

I don't know how we keep going on without him here, but somehow we do.

It is ironic that he came into the world with half a heart, now his heart no longer hurts and it is whole again. That is because he has the other half of my heart. My heart is forever broken.

Mommy misses you so much Drew Drew. I love you forever. Happy Heart day

Seems like yesterday

It has been 1 month since Drew became an angel. It feels like he was just here with us yesterday. We have all heard the saying " time heals all wounds", right now, not so much. Everyday we do not have our little Drew with us feels harder to get through. As each day passes, it truly becomes more unthinkable that he is gone forever.

I look at his pictures each and every day it gives me joy to see him but hurts because I can't hold him or kiss him. I would give anything to hear " I love you Mommy" just one more time. I know I can't, and the memories are now my treasure.

As we enter into 2011, I hope and I pray that this year will a bit better for our family.

To all of our friends and family who continue to check Drew's site, thank you and I hope you find, peace, good health and true happiness in the new year.

Thank you

Thank you to everyone who has expressed their sympathy for the loss of our beautiful baby boy.

The words of so many are comforting and the memories shared by others bring a smile to my face.

Drew's wake and funeral had so many people attend and Brian and I thank you for coming. It meant a lot to us to see how many people went out of their way to come and say goodbye.

Drew's funeral was in every way beautiful and heart warming, just like Drew. If you did not come to the cemetery I will explain the beautiful experience.

As we headed down the long road towards the cemetery, we passed our other son's school, the students, teachers, and principal all stood outside and made the sign of the cross as Drew passed by them.

It was a sight to be seen. Drew would of loved it. The innocence of a child was truly expressed in that single moment.

As we headed toward Drew's final resting spot, the sun slowly started to come out and the rain stopped. As we said our final goodbye to our baby the sun shined so brightly it was blinding. It was as if the clouds opened up and in one spot the stream of beautiful sunlight shined down.

I will believe in my heart that Drew was giving us a sign. The sign that he is happy.

We will always miss Drew and the joy he brought to each of our lives. Drew gave everyone a reminder to live your life completely and to love unconditionally.

I love you Drew, Love Mommy

April 23, 2007-November 26, 2010

This is a post I never wanted to write. Our baby boy passed away on Friday, November 26th at 5:25pm. He suffered a massive stroke and cardiac arrest that he could not fight back from. He tried so hard though. God needed a feisty little blond angel with a devious smile and bounds of energy to help him in heaven. I know he is wearing his buzz lightyear wings now. Drew was surrounded by his family and all the love you could imagine.

We love you to the moon and stars and back again and to infinity and beyond!

Drew Drew, "I lub you and adore you forever" Mommy and Daddy

Seizures or Heart Issues?

Drew has been having small episodes where he "faints". He turns very pale, becomes tired and for lack of a better medical word, passes out.

He had 2 episodes last week and now another one this morning. We called Dr. Orie and got him in right away to be seen. He had an EKG, and echo. Both came back fine. Right now it does not look like it is heart related but my gut feeling tells me it is.

He had an EEG yesterday because of the other episodes. I have tried to get a hold of Neurology and of course they are not quick to call you back or even give you guidance about what could be going on. Our wonderful pediatrician, Dr. Kanaley has tried to expedite the process by getting in touch and letting the Neuro Doctors know what the latest development has been. I hope we get answers soon. 3 maybe more episodes and no one but Dr. Kanaley and us seem to think this is a big problem.

I may have to call Strong hospital's Pediatric Neuro department and get a second opinion. I need to feel confident that we are going to get to the bottom of this.

Halloween

Buzz lightyear and cowboy Woody to the rescue!

The boys have talked about Halloween since September. Drew has been firm that he wanted to be Buzz. He would only be the Buzz that had light up wings and was a "real buzz". Of course this meant that the costume he had to have was the most expensive. He truly is just like his Mom!

Apple farm

We went to the apple farm and had a great time. The boys love going each fall. They ride the train to the apple orchard and pick their apples. Drew eats at least 3-4 apples from the trees. He thinks he is so cool picking his own apples and putting them in his own bag. We came home with 4 large bags of apples and lots of apple cider, the boys favorite fall beverage!